Saturday, 19 August 2017

9 & 10SEPT17 (SAT & SUN) ATRIA SHOPPING GALLERY : "REMEMBER ME" World Alzheimer's Month Awareness Campaign

  COMMEMORATE 



 ‘Remember me’
Early Diagnosis Means i Can Live Well for Longer 
9 & 10 SEPTEMBER 2017
ATRIA SHOPPING GALLERY (cENTRE COURT, GROUND FLOOR)
DAMANSARA JAYA, PETALING JAYA


In collaboration with Atria Shopping Gallery, Alzheimer's Disease Foundation Malaysia (ADFM) will be commemorating World Alzheimer's Month on 9 & 10 September at Atria Shopping Gallery - an international campaign every September to raise awareness and challenge the stigma that surrounds dementia.

Dementia is a collective name for progressive degenerative brain syndromes which affects memory, thinking, behaviour and emotion. Alzheimer’s disease is the most common form of dementia.  

Every 3 seconds, someone in the world develops dementia.  There are almost 50 million people with dementia worldwide, and this will nearly triple by 2050. Dementia is now widely recognized as one of the most significant health crisis of the 21st century.  Today, dementia affects more than 123,000 Malaysians and it will affect to 590,000 Malaysians by the year 2050.


This year’s Theme is “Remember Me – An early diagnosis means you can live well for longer”focused on the importance of early detection and diagnosis of dementia, encouraging everyone to recognize the early warning signs of dementia, to seek support where available and raise awareness of the need for additional care for those affected by or living with dementia.

The programmes lined up for the two days event include Launch of WAM Awareness Campaign featuring a Poco-Poco Line Dancing Sessions and a Dementia Community Corner, Dementia Awareness Talk by experts in the field to gain a better understanding on dementia, Public Forum “Building A Dementia Friendly Community”, Memory Walk, Treasure Hunt, Free Health Screening (including memory tests), Poster Exhibition, Exhibitor Booths by various partners, Brain Gym/Abacus activities for dementia persons and caregivers, and awareness talk in Mandarin. 

Any inquiries, email: jenny@adfm.org.my or jennyho8@gmil.com, WhatsApp: 016 608 2513.

YOUR SUPPORT DOES MAKE A DIFFERENCE
 JOIN THE CAMPAIGN !


PROGRAMME
SATURDAY, 9 SEPTEMBER 2017
Atria Shopping Gallery – CENTRE COURT, GROUND FLOOR
Time:
Program
Speaker / Facilitator
10.30am          
Registration (media and guests)

10.40am
Welcome Address by Atria Management
Representative, Atria Management (TBA)
10.50am
Opening Address by Chairman of ADFM Exco 
Datuk Dr Yim Khai Kee
10.55am
Message from Alzheimer’s Disease International (ADI)
DY Suharya, Regional Director, ADI Asia Pacific Region    
11.00am 
Speech by Patron of  ADFM
Puan Sri Wendy Ong
11.05am
Launch of WAM 2017:
Mock-Key Presentation of the Community Corner to Puan Sri Wendy Ong, Patron of ADFM
11.30am
12.30pm

MEMORY WALK 2017

(1) Assemble and Flag-Off at Centre Court, Ground Floor.
(2) Finishing Line at Community Corner (3rd Floor) and ribbon-cutting.


(3) Registration Fee:  RM20/- per participant with T-Shirt and Goody Bag (AD person is FREE – to be accompanied by family caregiver) 
(4) To Register, Click On: Registration Form for Instructions.
Further inquiries, email : jenny@adfm.org.my
jennyho8@gmail.com, or WhatsApp 016 608 2513 or call 037931 5850.

12.30pm 2.00pm

LUNCH BREAK (Note: Registered participants will be given discounted vouchers sponsored by Atria Tenants).


2.00pm -
4.45pm





Public Talks:
(1)  Dementia Vs Old Age  by Dr Yau Weng Keong, Consultant Physician & Geriatrician

(2) Handling Challenges in Dementia by Dr Elizabeth Chong, Geriatrician

(3) Communication in Dementia by Dr Alan Pok, Geriatrician
4.45pm
Nutrition and Dementia by Ms Mageswary, Dietician
5.30pm
Music Recital (Quartet / Mini Symphony)
8.00pm
Poco-Poco Dance and Abstract by Dr Asti & her Team from Alzheimer’s Indonesia
9 & 10 SEPTEMBER 2017:
11.00am – 9.00pm : FREE Health Screening
11.00am – 4.00pm : FREE  “Memory Test”  by UMMC Geriatric Unit – Priority to aged 65 and above, and follow by other aged group.

SUNDAY, 10 SEPTEMBER 2017 (CENTRE COURT, GROUND FLOOR)
Time:

10.30 am
Treasure Hunt “Remember Me” – No Registration Fee (lots of surprised gifts – more details to be announced soon).

12.00 pm
VPS Music School Performance & Graduation Event

2.30pm 4.30pm
PUBLIC FORUM:
“Building A Dementia Friendly Community”  facilitated by Prof. Dr Shahrul Kamaruzzaman, UMMC

Forum Panel:  Dr Lee Fatt Soon, Prof. Dato Dr Raymond Azman Ali,
Dr Azlina Ahmad Annuar, Ms Satiapoorany Subramaniam 

4.30pm-5.30pm
Living A Healthy Lifestyle As You Age
by Prof. Dr  Chin Ai Vyrn , Consultant Geriatrician
6.00pm
Musical Recital (Quartet or Mini Symphony)
8.00pm
Poco-Poco Dance and Abstract by Dr Asti & her Team from Alzheimer’s Indonesia

CONCURRENT SESSION (3RD FLOOR – ADFM/atria community corner)
SUNDAY, 10 SEPTEMBER 2017

2.00pm
For seating & logistic purposes, Registration is required  - email jenny@adfm.org.my or whatsapp 016 6082513 with Full Name/s & Mobile Contact.

Mandarin Awareness Talk “Dementia: Is It Inevitable? What Should I Do?”
By Geriatrician, Dr Goh Cheng Beh and Geriatric-Psychiatric, Dr Chan Yee Fei.

3.30 pm
This Session for Dementia Persons, their Family Caregivers & Care Workers - Compulsory Registration due limited places.  Please email jenny@adfm.org.my -  providing Full Name/s and Mobile Contact.

Brain Gym / Abacus Activities for Dementia Persons and Caregivers
By abcd-Achievers Brain Cognitive Development (A movement based learning centre)

4.30 pm-5.30pm
For Dementia Persons, their Family Caregivers & Care Workers 
Music / Singing Session for Dementia Persons By Mr Cheong Kwok Yew








Saturday, 5 August 2017

Nation's Space Agency Develops Tracking System for Alzheimer's Persons

(Source:  By SUZANNA PILLAY – New Sunday Times, July 30, 2017 @ 11:27am)

A state-of-the-art tracking system for Alzheimer’s disease persons has been developed by the Science, Technology and Innovation Ministry. Now in its trial run, the programme aims to provide caregivers with an alternative method of monitoring their family members.

TWO Alzheimer’s disease (AD) persons made headlines this year when they went missing, forcing their worried family members to seek help from police and the public.

In March, Lee Kong Hon, 71, from Kelana Jaya, was nowhere to be found after visiting Kuala Lumpur Hospital (HKL) with family members.

Three months later, another AD person, Yacob Carlos Abdullah, 68, from Shah Alam was reported missing after being spotted at a bus stop in Section 13, near a hypermarket.

Data from the United Nations (World Alzheimer Report 2015) on the prevalence of AD over a projected population of more than 30 million Malaysians in 2030, indicates that an estimated 261,000 or more are expected to have AD.

From this figure, more than 60 per cent of AD persons wandered off on their own. If they are not found within 24 hours, up to half of them may be involved in life-threatening situations.  According to Alzheimer’s Disease Foundation Malaysia (ADFM), AD occurs among those 65 or older. Above this age, a person’s risk of developing AD doubles approximately every five years. It can occur in younger people.

As the number of people aged 65 and above will exceed 10 per cent of the population by 2020, more Malaysians are increasingly vulnerable to the disease.

Technological advancements developed at National Space Agency (Angkasa) hope to allay these fears and ensure AD persons are getting the care they need.

Angkasa’s Tracking, Tracing and Trigger System (ATTracT) Alzheimer Module is a prototype system developed to determine the location of a person with AD at all times.
It’s a thumb up for the ATTracT system from Carlo Pangrazio and his wife, Mabel Gong.
Pix by Khairul Azhar Ahmad


Funded by the Science, Technology and Innovation Ministry’s (MOSTI’s) Social Innovation Programme, the project aims to benefit the AD community at the grassroots level by usingspace technology and global positioning system (GPS) technology.

Monitoring the movement and improving the safety of people with AD were what catalyzed ATTracT, said Angkasa Research Officer, Ooi Wei Han.

It aims to provide caregivers with an alternative method of monitoring AD persons, indoors and outdoors.

It seeks to improve the safety of people living with AD by reducing the risk of them getting lost and hurt in the process.

“The movements of senior citizens with AD will be monitored via ATTracT by a wristwatch enabled with satellite technology, SOS and virtual boundary control.

“The system also integrates Wi-Fi network capability to complement GPS, which will be useful when the GPS signal is weak or unavailable in an indoor environment,” Ooi added.

The watch is to be worn by the AD persons.  The guardian or caregiver can track and monitor the AD persons in real-time via smart devices.

The device will transmit the location of AD persons to caregivers every two to four minutes. Like smartphone devices, the device needs to be charged every one to two days.

The tracking system supports only Android mobile phones and works in all areas under telco coverage.

An alert will be sent to the guardian’s smart devices (up to four devices), which store the history of the Adperson’s movements in case he crosses the virtual boundary during monitoring.

Beside the mobile device, a real-time monitoring system is set up in caregiver centers to monitor all users’ movements under their supervision.

The information and movements will be stored in a dedicated database server at Angkasa headquarters in Banting, Selangor.

“The ATTracT System is in the Pilot Trial Stage and will be tested over three months.

“Angkasa is collaborating with ADFM for this purpose. If it is a success, the device will be made available to caregivers in Malaysia at between RM200 and RM300.

“Angkasa will most likely appoint a third party to distribute the system here,” Ooi added


Ooi Wei Han with the ATTracT watches. Pix by Mohd Khairul Helmy Mohd Din


AD person, Carlo Pangrazio, who is participating in the pilot trial, said the ATTracT device enabled him to be independent.

His wife, Mabel Gong, said the technology allowed her to keep track of Pangrazio’s whereabouts in real-time while she was at work.

“I like the function where I can set a virtual boundary. If he steps-out of the boundary, I get an alert on my phone. Now, with this device, he knows if he gets lost, he should stay where he is and wait for someone to come get him.”

However, she hoped the device could be waterproof and did not require to be charged daily.

Another caregiver, Zalina Arshad, decided to participate in the ATTracT trial even though her father, an AD person, lives in Kedah with her mother, his principal caregiver.

“My dad is going through a phase where he likes to get into his car and drive off without telling anyone. This has been happening frequently, so the device is handy to keep track of his movements.”

The alerts are being sent to Zalina’s phone as her mother is unable to process the information.
Nevertheless, Zalina can monitor her father’s movements from Kuala Lumpur and inform her mother accordingly.

“Like most older people, my mother is not tech-savvy, so she finds the technology a little confusing.

“Perhaps the ATTracT system could be more user-friendly, especially to older caregivers.”
Zalina said her mother also worried that her father would not want to put the device on because it looked “fancy”.

“My father likes to hide things that he thinks are valuable. Maybe Angkasa could develop a model that looks more functional as an option for users.”



Families or caregivers of AD persons who would like to participate in the FREE “ATTracT”  Pilot Trial are required to email:  jenny@adfm.org.my for more information.      

















Thursday, 13 July 2017

29 & 30 JULY17 ADFM - DEMENTIA CARE SKILLS (DCS) TRAINING WORKSHOP

To:  Family Caregivers for persons with Alzheimer's Dementia, 

Caring for a person with dementia can be very stressful and traumatic at times. Dementia not only affects the person living with the condition, but also the entire family. The greatest challenge is on you, the caregiver. With a better understanding of dementia, you can plan for and cope with the challenges that you may encounter in your caregiving journey.

ADFM will be conducting another DEMENTIA CARE SKILLS (DCS) Training Workshop for family caregivers (and their care workers) on:

Date:     Saturday, 29 July 2017 (9.00am – 5.00pm), &  
              Sunday, 30 July 2017 (9.00am – 1.00pm)

Venue:  ADFM PJ Day-Care Centre, No. 6, Lorong 11/8E, Seksyen 11, 46200 Petaling Jaya

This one and a half-day interactive training comprising 4-modules is designed to support you in your caregiving role with essential knowledge and skills to care for the person with dementia and yourself, using the Person-Centred Care Approach through sharing of real-life scenarios, discussions and identify potential strategies for managing caregiver stress.


Learning Outcome:

Module 1: Impact of Dementia and Person-Centred Care
•     Identify the principles of Person Centered Care (PCC)
•     Recognize the impact of dementia on person with dementia, and family caregivers
•     Identify your own level of stress and self-care strategies
•     Identify community resources available to support family caregivers

Module 2: Behavioral and Psychological Symptoms of Dementia (BPSD)
•     Understanding behaviour associated with dementia
•     Identify potential triggers for behaviour associated with dementia
•     Identify a range of options for supporting the person with dementia

Module 3: Effective Communication
       Describe the impact of dementia on communication
       Identify strategies for effective communication with a person with dementia, including:
Reality orientation, Validation, Reminiscence

Module 4: Purposeful and Meaningful Engagement
•     Recognize the value of promoting engagement with life for a person with dementia
•     Recognize the value of activity for a person with dementia
•     Identify ways of adapting activities to meet individual needs

PROGRAMME
Day One
Saturday
29 April 17 
0830 - 0900
0900 - 1100
1100 - 1115
1115 - 1315
1315 - 1400
1400 - 1600
1600 - 1615 
1615 - 1700

Registration
Module 1: Impact of Dementia and Person-Centered Care
Refreshment break
Module 2: Behavioural & Psychological Symptoms of Dementia Lunch break
Module 3 – Effective Communication
Tea break
Interactive Session
Q & A
Photo Session 
Day Two
Sunday
30 April 17
0830 - 0900
0900 - 1115
1115 - 1130
1130 - 1300 
Registration
Module 4 – Purposeful & Meaningful Engagement
Refreshment break
Module 4 (Cont’d)
Interactive Session
Q & A
Summary
ADFM Team of Trainers / Facilitators:
(1)     Geriatrician, Dr Khor Hui Min
(2)     Ms Satiapoorany, retired Nursing Educator
(3)     Ms Tan Saw Cheang, retired Nursing Educator  

NO Registration Fees for family caregivers, care workers, and significant others of persons with dementia.

To register, please email: jenny@adfm.org.my or via WhatsApp at 016 608 2513.

(1)    Full Name/s
(2)    Mobile contact
(3)    Email address
(4)    Indicate whether family caregiver or care worker, and
(5)    To whom you are caring for.


Best regards,
Jenny
ADFM National Caregivers Support Network
To Join, Sign Up at:  http://admalaysia.ning.com
ADFM National Caregivers Support Network is an online community platform for caregivers to seek support, information, advice, and share their caregiving challenges and experiences with other caregivers