Tuesday, 29 April 2008

Alzheimer’s To Strike One In Eight Baby Boomers

Alzheimer's to Strike One in Eight Baby Boomers

(Source:  Alzheimer's Association, "2008 Alzheimer's Disease Facts and Figures")

'http://www.alzinfo.org/newsarticle/anmviewer.asp?a=278'>Alzheimer's to Strike One in Eight Baby Boomers

 'http://www.alzinfo.org/newsarticle/anmviewer.asp?a=278'>Alzheimer's to Strike One in Eight Baby Boomers


Monday, April 21, 2008


About one in six female and one in 10 male baby boomers — or more than 10 million people overall — are expected to come down with Alzheimer's disease in the coming decades, a new report claims. The survey, conducted by the Alzheimer's Association, highlights the growing burden of Alzheimer's on the nation's health care system as the American population continues to grow older.


Overall, some one in eight boomers born between 1946 and 1964 are expected to suffer the memory loss, poor thinking and other symptoms of dementia as they hit their 60s, 70s and older. This year, the oldest baby boomers are turning 62, with millions more to follow in the years to come. The risk of developing Alzheimer's disease doubles every five years after age 65.


Today, more than five million men and women in the United States are living with Alzheimer's disease, with more than 400,000 new cases diagnosed each year. If no cure is found, there will be an estimated 450,000 new cases per year by 2010, and nearly a million a year by 2050.


The toll of Alzheimer's reaches far beyond those directly affected by the disease. The report notes that seven in 10 people with Alzheimer's live at home, where they are cared for by family members and others. This unpaid family time contributes some 8.4 billion hours of unpaid help to assist in care. Sons, daughters, brothers and sisters of those with Alzheimer's must often travel considerable distances, at great cost, to assist in the care of loved ones with the disease.. For nearly a third of family caregivers, services are required for five years or longer, requiring sacrifices to work and career, another hidden cost of the disease.


Although Medicare covers most hospital expenses, families caring for a loved one with Alzheimer's at home are often left on their own. As Alzheimer's progresses, the demands of care grow exponentially. Many families must hire home health workers to assist with care, with home care costing more than $150 per eight-hour shift, and much higher in many parts of the country. Eventually, most people with Alzheimer's must enter a nursing home or assisted-living facility, costing thousands of dollars per month.


The average hourly rate for home health aides in 2007 was $19 per hour. Adult day centres cost on average about $61 a day. Assisted living centres averaged about $3,000 per month, with specialized dementia centres adding an additional $1,100 to that cost. Nursing homes, the most costly, cost nearly $78,000 per year on average. In many areas of the country, costs can be considerably higher.


If you live to age 55, women are nearly twice as likely to develop Alzheimer's as men. Part of women's increased risk occurs because they tend to live longer than men overall. Age remains the greatest risk factor for the disease, with more and more people in their 70s, 80s and older succumbing to Alzheimer's.


Alzheimer's is the most common cause of severe memory loss in the elderly, accounting for some 60 to 80 percent of cases of dementia. In addition to the 10 million boomers expected to come down with Alzheimer's disease in coming decades, another 4 million will suffer from vascular dementia, dementia with Lewd bodies, and other ailments affecting memory and judgment, researchers estimate.


The findings highlight the enormous cost, both in dollars and in emotional wear-and-tear that Alzheimer's takes on young and old alike. Unless a cure is found, the burden of the disease in coming decades will grow more enormous.



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Monday, 28 April 2008

Talk On "An Introduction To Wellness Medical Qigong" By Master Tan Soo Kong



The KL-PJ Alzheimer's Caregivers Support Group Committee is organizing a Talk on "An Introduction To Wellness Medical Qigong" by Master Tan Soo Kong.

Details : 

Day/Date :      Saturday, 24 May 2008
Time :             2:30 pm
Venue :           Alzheimer's Day Care Centre (ADFM0

                        No. 9A, Lorong Bukit Raja,  

Taman Seputeh, 58000 Kuala Lumpur.

In his presentation, Master Tan Soo Kong will cover the following areas:

1)        What is QI and QIGONG?
(2)        What is Medical Qigong?
(3)        The Concept of Wellness Qigong.
(4)        The Diagnosis & Treatment, Techniques & Protocol of Wellness

             Medical Qigong to Treat Patients.
(5)        The Technique & Protocol of Self Healing in WMQ.


Master Tan, a successful entrepreneur in IT and F & B business, retired from his active business to pursue his passion in Qigong and Healing. Master Tan conducts Qigong training for beginners as well as those who want to be Professional Medical Qigong Practitioners. Beside Malaysia, his students and patients from Singapore, Australia, Indonesia, India, USA, Switzerland, Canada, New Zealand, Philippines, UK and Thailand have greatly benefited from his skill and knowledge.

Master Tan trained in Chi Dynamics with Grand Master Anthony Wee since 1982. He was later appointed a the Chief Instructor and Advisor to Healing Chi Association of Malaysia. He resigned from the positions after serving 5 years.

Master Tan is trained in the Art of Medical Qigong by several renowned Medical Qigong Masters, like Grand Master Shao Xing Xuan, a Professional Qigong Doctor.

Master Tan established Wellness Medical Qigong Centre to promote the Art of Qigong in Healing. He conducts various types of Medical Qigong classes and provides treatment services.

To register, call Katherine Leong/Janet Low at:
Tel :  603 - 2260 3158 / 2274 9060.

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Thursday, 24 April 2008

Alzheimer's Is Cruel

alzheimer'S IS CRUEL

The Taxi Driver stopped at Block 115 of Hougang Avenue, helped the old woman up the elevator and knocked at the door.  A young girl peeped out.


"This woman was lost wandering in the street.  She lives here?" the Taxi Driver asked.


"She's my grandma.  Thank you, Mister.  Fare – how much?"


"It's OK.  We must help the old," he said, hurried down the lift.


Alzheimer's, a sickness of old age, is cruel.  You have to live with these sufferers to really know what it's like, or listen to people who take care of them.


"I spend hours and hours looking after Mum: bathe her, feed her and change her diapers because she's incontinent.  She doesn't know me.  I talk to her and she doesn't say a word.  I don't mean to sound unkind but I do asked, "Who is this breathing statue?"


Says another, "Mum used to be orderly and tidy.  Now I can't bear the stench in her room.  Her small refrigerator smells of rotting food, her table littered with lizard droppings, and the bread stale and mouldy – and she just eats it.  And she wanders out by herself – I can't stop her.  Once she fell off the bus and broke three ribs."


It's really pitiful.  The pain is not so much on the patients who aren't aware of what's happening.  The pain is on those looking after them.  Taking care of our loved ones is time-consuming and a stressful effort.  Sometimes we feel downcast and isolated and worn out by loneliness.  Often we don't seek outside help because we believe only we can do the best for them, we love them.


With love comes pain.  Such love can only be born out of maturity.  It's a totally unselfish sacrifice.  A sacrifice we learn to cherish.  


Source:  By Daniel T.S Kon, a Singaporean CA Survivor. Extracted from his collections "A Reason To Live".  Edited by Jenny.




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Announcing Our National AD Members' Website

Dear Subscribers,

We thank you for your interest to subscribe to our blog. To get more value from your interest in this area, please join our Member's website at :


Membership is free!

There you will find more information such as :
- active discussions on AD issues
- photos of events
- one to one interaction with specific members & our panel of specialists and caregivers
- watch educational videos on AD
- File downloads of useful manual and information about care giving

And many more................

So, please go to our members website and click on "SIGN UP".

CLICK HERE TO GO TO OUR : National Alzheimer's Caregivers Network

If the link above is not working, please visit this URL address : http://admalaysia.ning.com/

We hope to see you there soon.

Best wishes,
Sean Tay

Thursday, 17 April 2008


Tackles the challenges of care-giving with this free football style "playbook" by Frank Broyles, former Athletic Director of the University of Arkansas Razorbacks. The Playbook is an engaging, how-to guide written for those who care for someone with Alzheimer's. Coach Broyles cared for his late wife Barbara, who had Alzheimer's disease. The Playbook is his personal perspective on care-giving.

As Alzheimer's disease progresses, the abilities of a person with dementia will change. As a caregiver, you can adapt a daily routine to support these changes with some creativity, flexibility and problem solving. The information in this section will help you do just that.

 Introduction
 Focus On The Person
 Choosing The Activitiy
 Your Approach
 Create A Supportive Place
 Planning Of The Day
 More Information

For the person with Alzheimer's, activities structure the time. Activities also can enhance a person's sense of dignity and self-esteem by giving purpose and meaning to his or her life.
Planning activities should focus on the:
• Person
• Activity
• Approach
• Place

Focus on the person
Activities should be appropriate to the person and reflect his or her interests.
• Keep the person's skills and abilities in mind
• Pay special attention to what the person enjoys
• Consider if the person begins activities without direction
• Be aware of physical problems
Choosing an activity
Well-planned activities can improve the quality of life of those with dementia.
• Focus on enjoyment, not achievement
• Encourage involvement in daily life
• Relate to past work life
• Look for favourites
• Change activities as needed
• Consider the time of day
• Adjust activities to stages of the disease

Your approach
Your approach to activities can bring meaning, purpose joy and hope to the person's life.
• Offer support and supervision
• Concentrate on the process, not the result
• Be flexible and patient
• Be realistic and relaxed
• Help get the activity started
• Break activities into simple, easy-to-follow steps
• Assist with difficult parts of the task
• Let the individual know he or she is needed
• Stress a sense of purpose
• Don't criticize or correct the person
• Encourage self-expression
Create a supportive place for the activity
Create a safe, comfortable and supportive environment for activities.
• Make activities safe
• Change your surroundings to encourage activities
• Minimize distractions that can frighten or confuse the person

Planning the day
A planned day allows you to spend less time and energy trying to figure out what to do from moment to moment. To pick activities and organize the day for the person, think about:
• What activities worked best and which didn't? Why?
• Were there times when there was too much going on or to little to do?
• Were spontaneous activities enjoyable and easily completed?
• Was the person bored or distracted? Is it time to introduce a new activity?

Example of a daily plan:
• Wash, brush teeth, get dressed
• Prepare and eat breakfast
• Discuss the newspaper or reminisce about old photos
• Take a break, have some quiet time
• Prepare and eat lunch, read mail, wash dishes
• Listen to music or do a crossword puzzle
• Take a walk
• Prepare and eat dinner
• Play cards, watch a movie or give a massage
• Take a bath, get ready for bed

(Source : "Coach Broyles Playbook" by Frank Broyles - http://www.alz.org/living_withalzheimers_caring_for_alzheimers.esp)

Wednesday, 16 April 2008

The Stresses Of Care-Giving

The Stresses Of Care-Giving

Caring for an individual with Alzheimer's disease or a related dementia can be challenging and, at times, overwhelming. Frustration is a normal and valid emotional response to many of the difficulties of being a caregiver. While some irritation may be part of everyday life as a caregiver, feeling extreme frustration can have serious consequences for you or the person you care for. Frustration and stress may negatively impact your physical health or cause you to be physically or verbally aggressive towards your loved one. If your care-giving situation is causing you extreme frustration or anger, you may want to explore some new techniques for coping.

When you are frustrated, it is important to distinguish between what is and what is not within your power to change. Frustration often arises out of trying to change an uncontrollable circumstance. As a caregiver of someone with dementia, you face many uncontrollable situations. Normal daily activities—dressing, bathing and eating—may become sources of deep frustration for you. Behaviours often associated with dementia, like wandering or asking questions repeatedly, can be frustrating for caregivers but are uncontrollable behaviours for people with dementia. Unfortunately, you cannot simply change the behaviour of a person suffering from dementia.

When dealing with an uncontrollable circumstance, you do control one thing: how you respond to that circumstance.In order to respond without extreme frustration, you will need to:

learn to recognize the warnings signs of frustration;
intervene to calm yourself down physically;
modify your thoughts in a way that reduces your stress;
learn to communicate assertively;
learn to ask for help.
Warning Signs of Frustration

If you can recognize the warning signs of frustration, you can intervene and adjust your mood before you lose control. Some of the common warning signs of frustration include:

shortness of breath
knot in the throat
stomach cramps
chest pains
compulsive eating
excessive alcohol consumption
increased smoking
lack of patience
desire to strike out
Calming Down Physically

When you become aware of the warning signs of frustration, you can intervene with an immediate activity to help you calm down. This gives you time to look at the situation more objectively and to choose how to respond in a more controlled way.

When you feel yourself becoming frustrated, try counting from one to ten slowly and taking a few deep breaths. If you are able, take a brief walk or go to another room and collect your thoughts. It is better to leave the situation, even for a moment, than to lose control or react in a way you will regret. If you think someone may be offended when you leave the room, you can tell that person you need to go to the restroom. You can also try calling a friend, praying, meditating, singing, listening to music or taking a bath. Try experimenting with different responses to find out what works best for you and the person you care for.

The regular practice of relaxation techniques can also help prepare you for frustrating circumstances. If possible, try the following relaxation exercise for at least ten minutes each day:

Sit in a comfortable position in a quiet place. Take slow, deep breaths and relax the tension in your body. While you continue to take slow, deep breaths, you may want to imagine a safe and restful place and repeat a calming word or phrase.

Modifying Your Thoughts:

As you take time out to collect your thoughts, try rethinking your situation in ways that reduce frustration. How you think often affects how you feel. Of course, feelings of frustration arise from difficult circumstances. If, however, you analyse your response to a frustrating situation, you will usually find some form of maladaptive—or negative—thinking that has the effect of increasing your frustration, preventing you from looking at your situation objectively, or finding a better way to deal with it.

Below are six major types of unhelpful thought patterns common among caregivers. Following each unhelpful thought pattern is an example of an adaptive—or more helpful—thought that can be used as self-defense against frustration. Familiarizing yourself with the unhelpful thought patterns and the adaptive responses can help you control your frustration.

Over-generalization: You take one negative situation or characteristic and multiply it. For example, you're getting ready to take the person in your care to a doctor's appointment when you discover the car battery has died. You then conclude, "This always happens; something always goes wrong."

Adaptive response: "This does not happen all the time. Usually my car is working just fine. At times things don't happen the way I would like, but sometimes they do."

Discounting the positive: You overlook the good things about your circumstances and yourself. For example, you might not allow yourself to feel good about care-giving by thinking, "I could do more" or "anyone could do what I do."

Adaptive response: "Care-giving is not easy. It takes courage, strength, and compassion to do what I do. I am not always perfect, but I do a lot and I am trying to be helpful."

Jumping to conclusions: You reach a conclusion without having all the facts. You might do this in two ways:

Mindreading: We assume that others are thinking negative thoughts about us. For example, a friend doesn't return a phone call, and we assume that he or she is ignoring us or doesn't want to talk to us. Adaptive response: "I don't know what my friend is thinking. For all I know, she didn't get the message. Maybe she is busy or just forgot. If I want to know what she is thinking, I will have to ask her."

Fortune-telling: You predict a negative outcome in the future. For example, you will not try adult day care because you assume the person in your care will not enjoy it. You think, "He will never do that. Not a chance!" Adaptive response: "I cannot predict the future. I don't think he is going to like it, but I won't know for sure unless I try."

"Should" statements: You try to motivate yourself using statements such as "I should call mother more often" or "I shouldn't go to a movie because Mom might need me." What you think you "should" do is in conflict with what you want to do. You end up feeling guilty, depressed or frustrated.

Adaptive response: "I would like to go to a movie. It's okay for me to take a break from care-giving and enjoy myself. I will ask a friend or neighbor to check in on Mom."

Labelling: You identify yourself or other people with one characteristic or action. For example, you put off doing the laundry and think, "I am lazy."

Adaptive response: "I am not lazy. Sometimes I don't do as much as I could, but that doesn't mean I am lazy. I often work hard and do the best that I can. Even I need a break sometimes."

Personalizing: You take responsibility for a negative occurrence that is beyond your control. For example, you might blame yourself when the person in your care requires hospitalization or placement in a facility.

Adaptive response: "Mom's condition has gotten to the point where I can no longer take care of her myself. It is her condition and not my shortcomings that require her to be in a nursing home."

Using the "Triple-Column Technique": Unhelpful thought patterns are usually ingrained reactions or habits. To modify your negative thoughts, you will have to learn to recognize them, know why they are false, and talk back to them.

One helpful way to practice using more adaptive thinking processes is to use the "triple-column technique." Draw two lines down the centre of a piece of paper to divide the paper into thirds. When you are feeling frustrated, take a personal "time out" and write your negative thoughts in the first column.In the second column, try to identify the type of unhelpful pattern from the six examples above. In the third column, talk back to your negative thoughts with a more positive point of view. See below for examples.

Negative Thoughts
Thought Patterns
Adaptive Thoughts

(Caregiver burns dinner.) "I can't do anything right!"
I'm not perfect, but nobody is perfect. Sometimes I make mistakes, and sometimes I do things well.

(Caregiver has coffee with a friend and spouse has accident at home.) "I'm selfish and rotten! If I had been home, he wouldn't have fallen."
Labelling; personalizing
I'm not selfish or rotten. I do a lot to take care of my husband, but I need to take care of myself as well. He might have fallen even if I had been home.

(Brother does not show up to take your Dad to the doctor.) "I knew I couldn't trust him.I should just do it myself next time."
Jumping to conclusions; should statements
I don't know why he didn't come, but I need his help, so we'll have to find ways for him to share the burden of Dad's care.

Communicating Assertively:

Good communication can reduce frustration by allowing you to express yourself while helping others to understand your limits and needs. Assertive communication is different from passive or aggressive communication. When you communicate passively, you may be keeping your own needs and desires inside to avoid conflict with others. While this may seem easier on the surface, the long-term result may be that others feel they can push you around to get their way.

When you communicate aggressively, you may be forcing your needs and desires onto others. While this allows you to express your feelings, aggressive communication generally makes others more defensive and less cooperative.

When you communicate assertively, you express your own needs and desires while respecting the needs and desires of others. Assertive communication allows both parties to engage in a dignified discussion about the issue at hand.

Keys to assertive communication are:

Respecting your own feelings, needs and desires.
Standing up for your feelings without shaming, degrading or humiliating the other person.
Using "I" statements rather than "you" statements. For example, say, "I need a break" or "I would like to talk to you and work this out" instead of "You are irresponsible" or "You never help out!"
Not using "should" statements. For example, say, "It's important to me that promises be kept," instead of "You should keep your promise."
The Critical Step: Asking for Help

You cannot take on all the responsibilities of caregiving by yourself. It is essential that you ask for and accept help. Discuss your needs with family members and friends who might be willing to share caregiving responsibilities. People will not realize you need help if you do not explain your situation and ask for assistance. Remember, you have the right to ask for help and express your needs.

When to say "Yes"

Don't be afraid to say "Yes" if someone offers to help. Say "Yes" at the moment a person offers to help rather than saying "maybe" and waiting until you are in a fix. Have a list handy of errands or tasks you need help with. Keep in mind that people feel useful and gratified when they are able to help others.

When to say "No"

Often, caregivers are pulled in multiple directions. In addition to the demands of caregiving, you may feel compelled to meet the demands of your immediate and extended family, your friends and your employer. Learn how to say "No" to the demands of others when you are overwhelmed or need a break. It is your right to say "No" to extra demands on your time without feeling guilty.

Learning Effective Communication Techniques for Dementia Care-giving :

Many families find it frustrating to communicate with a loved one who has dementia. The person with dementia may repeat questions over and over or mistake you for someone else. It is important to remember that the person with dementia cannot control behavior caused by their disease. They do not need to be corrected or grounded in "reality." You can distract them or just agree with them as a way to reduce your frustration.

It can be helpful, however, to learn more about dementia and effective communication techniques which will ease your frustration. For example, use simple, direct statements, and place yourself close when speaking to a person with a cognitive disorder. Try not to argue about unimportant things such as what the date is. Allow extra time to accomplish tasks such as dressing. Remember, people with dementia often react more to our feelings than our words. Finding ways to be calm can help you to gain cooperation.

Self-Care to Prevent Frustration :

Care-giving can be tiring and stressful. When you're caring for others, it's easy to forget to care for yourself. While it may be difficult to find time to focus on yourself and your needs, it is very important that you do so to prevent frustration and burnout. Here are three steps to taking better care of YOU:

Make Time for Yourself :

You may feel guilty about needing or wanting time out for rest, socialization and fun. However, everyone deserves regular and ongoing breaks from work, including caregivers. "Respite" providers can give you the opportunity to take the breaks you need. Respite breaks may be provided by in-home help, adult day care, "friendly visitor" programs, friends and neighbours, or other means. The important point is to allow yourself to take a break from care-giving.

Take Care of Yourself :

Although care-giving may make it difficult to find time for yourself, it is important to eat well, exercise, get a good night's sleep and attend to your own medical needs.When you do not take care of yourself, you are prone to increased anxiety, depression, frustration and physical distress that will make it more difficult to continue providing care.

Seek Outside Support :

Sharing your feelings with a counsellor, pastor, a support group, or with another caregiver in a similar situation can be a great way to release stress and get helpful advice.

(Source: Family Caregiver Alliance)

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Monday, 14 April 2008

The Penang AD Support Group Organizing One-Day Training Course For Caregivers On Caring Dementia/Alzheimer's People

The Penang AD Support is organizing a One-Day Training Course for Caregivers on caring for people with Dementia/Alzheimer's Disease in Penang by a Consultant from N.Z. in Aged & Dementia Care.

The One-Day Training Course is scheduled tentatively in June 2008 in Penang,  if the response from the public is above 30 persons

Caregivers and the public who are interested, please register by contacting / Email :

Ruby at 017-4577868 / sseu@tm.net.my OR
Tan Yeow Joo at 04-656 5291 / besi1954@yahoo.com


Penang AD Support Group - 20 April (Sun) 3pm to 5pm : A Sharing Session Cum High Tea For AD Caregivers

The Penang AD Support Group is holding a Sharing Session cum High Tea for AD Caregivers. 
The details of the event are as follows:
Date  :  Sunday, 20 April 2008
Time  :  3:00pm to 5:00pm
Venue  :  Penang Cheshire Home, Babington Avenue, off Barrack Road, Penang
Guest Speaker : Mr Willie Kwa from UK.
Together with the Penang Delegates who attended the 2nd National Alzheimer's Caregivers Conference held on 04-06 April 2008, we will share with you the papers presented by our panel of distinguished speakers.
We will aso update you on the proposed plan for all the Support Groups in the country to reach out together to all AD Patients and Caregivers at a national level; and the official launch of the National Alzheimer's Caregivers Network on 6 April 2008 at the conference.   
Admission is FREE.  All Caregivers with their mobile loved ones and interested public are most welcomed.    
To register, call/Email Ruby at 017-457 7868 / sseu@tm.net.my or Tan Yeow Joo at 04 - 656 5291 / besi1954@yahoo.com 


Sunday, 13 April 2008


New Sunday Times, 13 April 2008
LONDON:   New therapy could hold out hope for Britain's 400,000 Alzheimer's Sufferers.
Doctors are calling for a clinical trial of an experimental drug treatment  that  it is claimed could reverse the symptoms of Alzheimer's disease "in minutes".

US researchers say the treatment allowed an 82-year-old sufferer to recognise his wife for the first time in years.

However, UK specialists believe the claims should be properly tested as only a few patients have been treated so far.

The treatment involves injecting a drug called Enbrel -- which is normally used to treat arthritis -- into the spine at the neck.
Patients are then tilted to encourage blood flow into the brain where the drug is designed to block a chemical responsible for inflammation.

At least one Alzheimer's patient had his symptoms reversed while others have shown some continuing improvement in problems such as forgetfulness and confusion after weekly injections.

They needed less help from caregivers during treatment, which appears to reach a plateau at three months.

Around 50 people are being treated by the Institute of Neurological Research (INR), a private clinic in California, with some having had injections for three years.

The experiment follows the discovery that levels of TNF (tumour necrosis factor) can be up to 25 times higher in the fluid surrounding the brain in sufferers of Alzheimer's disease.

Enbrel, a biologic treatment licensed for rheumatoid arthritis, binds to excess TNF in the body and makes it inactive.

Enbrel is not approved for treating Alzheimer's in the US or in the UK and is regarded at this stage as an experimental therapy.

Professor Edward Tobinick, of the University of California Los Angeles and director of INR is leading the research.

He said the latest report was an in-depth account of one patient's response to treatment.

He said: "It makes practical changes that are significant and perceptible, making a difference to his ability to do activities of daily living such as getting around, accomplishing things and conversing."

He added: "Some patients have been able to start driving again. They don't come back to normal but the change is good enough for patients to want to continue treatment, and some have been doing so for three years.

"We are working with several universities and larger trials are getting under way."

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Thursday, 10 April 2008

Self Awareness - By Dr. Nisha Rani

Be in touch with whatever you do. Slow down if you need to but do not do things in a hurry. Memory will cheat you as you may not be able to recall where you kept your watch.

Live life with a golden touch. Live is precious. Feel every moment of it. Reflect on things you do everyday and think about how you could do them differently for the sake of life and living.

Reflection is like a prayer. We are in touch with ourselves and sometimes with God, for the sake of improving quality of life.

Reflection teaches us "how" and prepares us to be ready and calm when in a challenging situation.

Is Alzheimer's Disease about Role Reversal for the caregiver and the elderly?

They loved us too, now we need to love them. They taught us how to walk and talk. They did not laugh at us when we made silly mistakes. They guided us. They cleaned us when we soiled our pants. They did not throw us out of their homes or send us away.

It is our time to give back what they gave us.

Lets love them, love them, love them with all our hearts. Pls sit back and watch the powerpoint.

Click Here : For Sons & Daughters

Love you all and with Warm Regards


Monday, 7 April 2008

Healthcare groups turn to blogging too

Sunday April 6, 2008
Source : The Sunday Star Newspaper

GENTING HIGHLANDS: It is not just political activists who have turned to blogs, healthcare support groups are joining the bandwagon, too.

Alzheimer's Disease Foundation Malaysia (ADFM) is the latest to turn to blogs to help bridge the information gap among patients and caregivers.

Two sites http://www.adfmmalaysia.blogspot.com/ and http://www.admalaysia.ning.com/ (National Alzheimer's Caregivers Network) are expected to be launched today, the final day of the National Alzheimer's Caregivers Conference here.

Event organising chairman Ong Eng Joo said members could post articles on the disease on the blogs.

Pretty little things: Wendy Ong (right) and ADFM founder Toh Puan Aishah Ong looking at the souvenirs on sale at the conference in Genting Highlands yesterday.

"We are also planning to set up a helpline, where the public can post questions which will be referred to professionals. The answers will be published online," he told The Star.

Ong said they hoped to incorporate a chat room, which would be moderated by doctors, so that the public have a platform to discuss Alzheimer's Disease.
He said a pool of 10 to 15 specialists had agreed to be moderators.
Earlier, ADFM patron Datin Seri Wendy Ong, who launched the three-day conference, said: "We know that there is still so much that has to be done to make information more accessible to caregivers, especially those living in remote areas.
"With ADFM setting up a National Caregivers Network, more information on the disease will be shared among the caregivers."

Press release - NEWS : Alzheimer’s Disease Foundation Malaysia turns to blogging

Press Release - News (April 7th, 2008)


Alzheimer's Disease Foundation Malaysia turns to blogging in their efforts to reach out to caregivers in the country!


Alzheimer's Disease Foundation Malaysia joined the bandwagon to blog in their lastest effort to reach out to caregivers in the country. Over the weekend (4th April-6th April 2008), Alzheimer's Disease Foundation Malaysia launched the blog at its National Alzheimer's Caregivers Conference 2008 at Genting Highlands.


Datin Seri Wendy Ong officially opened the Conference expressing the enormous needs out there, especially for the many who live in the more remote parts of the country, who do not have access to specialist care. Addressing over 300 participants, ADFM Patron Datin Seri Wendy Ong, who launched the three-day conference said, "We know that there is still so much that has to be done to make information more accessible to caregivers, especially those living in remote areas. With the setting up of the National Alzheimer's Caregivers Network, more information on the disease will be shared among caregivers".


The Organising Committee Chairman, Mr Ong Eng Joo said that today's conference benefited only about 300 people while we have about 250,000 caregivers all over the country, this is only 0.1% of their caregiving community! He added, "30 years ago, it would have been  an insurmountable task if not impossible, to try and reach out to these 250,000 caregivers with the click of the mouse! The National Alzheimer's Caregivers Network is launched today, to strife towards this objective. We hope to make a caregiver in Gua Musang or Tawau just a whisper away from fellow caregivers and the Alzheimer's Community."


He was talking about the borderless, timeless web-based platform that was launched. Any caregiver can access our blog at their own convenience any where they are at anytime of the day. The two sites www.adfmmalaysia.blogspot.com and www.admalaysia.ning.com . He added, "We will incorporate 6 basic facilities in the blog"


The facilities are :-


          Dissemination of Information & Sharing of Information

          Exchange of Ideas

          Helpline Capabilities

          One-to-one or One-to-all Communication Capabilities

          News & Events Updates

          Chatroom Facilities


Seminar Sessions


During the Conference, specialists from as far as the United Kingdom presented their talk. The theme of the conference was, "Hope for the Future – Working Together for Better Dementia Care" . The talks were selected with a biase towards the practical aspects of caregiver.


Dr Lee Fatt Soon's presentation on "Understanding & Treating Difficult Dementia Behavior" highlights the importance of understanding the difficult behavior displayed by people suffering from Alzheimer's and why such behavior takes place, before we can address the problem.


Dr Esther Ebenezer spoke on, "Principles for Understanding & Communicating with a Person with Dementia" emphasises that effective communication with a person with dementia can only be effective if we know and understand the principles behind each situation.


Sharon Soon handled, "Caring for someone with dementia in the Home Environment". She gived a very practical aspect of caring for and loving someone with dementia stressing on safety aspects.


Dr Suraya Yusoff touched on, "The Darker Side of Alzheimer's Disease". There are a lot of difficult decisions that has to be made, decisions that even specialists will not be able to make for you. Family members have to really discuss pertinent issues before they can make such difficult decisions.


Dr Yau Weng Keong spoke on the favourite topic, "Latest Development In Preventive Intervention, Treatment & Therapies" Everything you want to know and need to know was clearly explained.


Willie Kwa shared his extensive experience in, "The Realities of Life with Dementia" touching on very practical facts that people with dementia and those caring for them have to come to terms with.


Tracy Chan gave practical aspects of , "Physical Care and Mobility for the Alzheimer's Patients" on how to handle and move patients around.


The Panel Discussion attracted a lot of interest until the Chairman had to stop the discussion as time was running out.


Prof Philip Poi summaries all the talks that has been presented in, "Fundamental Issues in Dementia Care", issues that are pertinent and has to be addressed.


Further Information


Anyone who needs further information on the Conference can contact us at Alzheimer's Disease Foundation Malaysia at 03-2260 3158 or 03-2274 9060 or Fax 03-2273 8493 and ask for Janet or Kat. After the clearance from our speakers we will post some materials on the conference on our blog.

Saturday, 5 April 2008

Do you know the 10 warning signs of Alzheimer's Disease?

Do you know the 10 warning signs of Alzheimer's Disease?

Are you aware of the plight of caregivers -- the friends and loved ones who care for Alzheimer's patients? These topics and more are covered in this presentation created by J-NEX Media for the Alzhemer's Association. For more information, please go to www.alzla.org.

Symptoms of illness often brushed aside - By By CHAN LI LEEN

Source : The STAR Newspaper
Date : Oct 10, 2007 (WED)
SYMPTOMS of Alzheimer's Disease are often disregarded as signs of old age, making it too late before anything is done to help the sufferer, Datin Seri Wendy Ong said.
Wendy, who is patron of Alzheimer's Disease Foundation Malaysia (ADFM), said knowledge about the disease was limited and many tend to treat the decline in one's mental functions as just growing old.
"In thinking so, help is not sought until the disease has reached an advanced stage.
Its symptoms include recent memory loss, difficulty in performing familiar task, disorientation of place and time, problem with language and misplacing things.
The forum, jointly organised by ADFM and the Perak MCA with Dr Mah Hang Soon as organising chairman, also included free screening of the disease.
Lending support: Wendy (second right) visiting a screening booth during the ADFM public forum. Among those with her is Dr Mah (in batik shirt).
Wendy, who is the wife of Housing and Local Government Minister Datuk Seri Ong Ka Ting, said family members inevitably become affected by the emotional and mental changes that a person with the disease goes through.

"Despite that, family members need to be patient and understanding in dealing with the disease," she said.

In his speech, ADFM board of trustees president Datuk Jeffrey Ng Chin Heng said the foundation was looking into setting up another day care centre after the one in Taman Seputeh, Kuala Lumpur.

"We are most willing to set it up in Ipoh if we get a piece of land from the Government or any private organisations," he said.

Increasing Awareness On Dementia

DATE : Nov 4, 2007 (Sunday)

Filial piety may be the cause of late detection of Alzheimer's Disease among Malaysians, Alzheimer's Disease Foundation Malaysia (ADFM) patron Datin Seri Wendy Ong said.

“Many families, especially in the rural areas, still consider Alzheimer's as part of the aging process and do not seek help and treatment until the situation worsens,” she said.

She said this when opening a public forum entitled “Dementia is Everyone's Business” organised by ADFM yesterday. The forum was held to create awareness and share information on caring for those suffering from dementia.

Wendy Ong, who is the wife of Housing and Local Government Minister Datuk Seri Ong Ka Ting, urged those diagnosed with early dementia to seek medical treatment.

She said this could help caregivers be better prepared and cope with the problem.

“Early treatment will also enable them to maintain a reasonable quality of life,” she said.

Based on international statistics, she said 5% of people between the ages of 65 and 80, and 20% of those aged above 80 will have dementia.

“It is a disease that hits people as young as 45 years old.

“As our population ages, we are going to experience more and more cases of dementia, especially Alzheimer's Disease,” she said.

Speaker Willie Kwa, an ADFM exco member, said it was hard having to look after people with early dementia because they were sometimes rational and other times confused and would talk gibberish.

“Quite often they lose the ability of knowing what they are doing, and have very short attention span and frequent memory lapses,” said Kwa, a retired mental health practitioner for the elderly in Britain.